Note: This column describes the author’s own experiences with Xyrem (sodium oxybate). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In 2010, I almost died from a cantaloupe-sized hepatocellular adenoma wrapped around my portal veins. People hear the word…
Do Sleep Justice — Rachel Nesmith
Rachel, who has narcolepsy with cataplexy, is an advocate, columnist, and Project Sleep Rising Voices trained speaker and Patient Senate representative. She cohosts PWN4PWN’s NapChat podcast and participates in its volunteer outreach community. Rachel enjoys singing, songwriting, and spending time with her family, including her husband Kerry and daughter Savannah, in their Aubrey, Texas, home.
In my experience, the people I meet in the narcolepsy community often become more than friends. They become like family. They are fellow warriors, advocates, and truth-tellers who challenge me to see my disease a little differently. Solomon Briggs, a brilliant friend and fellow advocate, is one of those…
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