One lesson stands out as I look back on my diagnosis of narcolepsy with cataplexy: You must become your own best advocate. No one can fight quite like you can to get the diagnosis and treatment you need to function in daily life. In the fall of 2000, I…
Do Sleep Justice
— Rachel Nesmith
Rachel, who has narcolepsy with cataplexy, is an advocate, columnist, and Project Sleep Rising Voices trained speaker and Patient Senate representative. She cohosts PWN4PWN’s NapChat podcast and participates in its volunteer outreach community. Rachel enjoys singing, songwriting, and spending time with her family, including her husband Kerry and daughter Savannah, in their Aubrey, Texas, home.
In my dad’s eyes, I’ll always be his beautiful, inquisitive, and funny daughter. He knew me before I developed narcolepsy. Recently, I interviewed my dad, David, about my life with the rare disorder. (Sometimes you can get to know a person best through a parent’s perspective.) Although…
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